The Irish EQ-5D-5L Survey, 2015-2016

Study number (SN): 0060-00

 

O'Neill, C. (2018). The Irish EQ-5D-5L Survey, 2015-2016. [dataset]. Version 1. Irish Social Science Data Archive. SN: 0060-00. URL http://www.ucd.ie/issda/data/irisheq-5d-5lsurvey2015-2016/

 

ABOUT THE STUDY

Data were collected for 1311 individuals in the Republic of Ireland between March 2015 and September 2016 using the EQ5D5L descriptive framework. The survey included the collection of self-report health status across five domains of health - mobility, self-care, usual activities, pain/discomfort and anxiety/depression - at five levels of severity. In addition a broad range of socio-demograpic data including age, gender, martial status, income, education and urban/rural location were collected. Data from the survey has been used to establish population norms for health using the EQ5D5L descriptive framework for Ireland (i.e. representative values of the resident population) and to examine variations in these beween groups differentiated by observed socio-demograpic characteristics. The data allows researchers to compare Irish norms with that of samples they may have generated or can access from other studies using the same instrument and to explore the sources of variations among and beween. This is the first national set of EQ-5D-5L data for Ireland.

 

MAIN TOPICS

  • Health
  • Self-reported Health Status

 

COVERAGE, UNIVERSE, METHODOLOGY

Population

The data were collected from 1311 residents of Ireland aged 18 years or older.

Observation units

  • Individuals

Temporal coverage

From 03/2015 to 09/2016

Geographical coverage

Country: Ireland

Methods of data collection

  • CAPI (Computer Aided Personal Interviewing)

Sampling procedures

A representative sample off Irish residents was drawn using a two-stage stratified clustering process as detailed by Haase and Pratschke, (2012). In the first stage, a sample of 54 small areas stratified by deprivation level and urban/rural classifications were drawn at random from across the country. In the second stage, within each small area, a sample of approximately 20 houses were selected at random. Random selection was achieved by using a random starting point and inviting a resident in every third house to participate in the survey. To achieve this, each house was visited up to three times throughout the day (and evening) in an effort to make contact with the householder. Where it was not possible to elicit a response from the selected house, it was replaced from among those in the immediate vicinity, generally based on immediate physical proximity. Within each house any adult capable of giving informed consent could volunteer to complete the survey, one volunteer per household being chosen at random.

Purposive sampling to augment the number of younger persons and males in the sample was undertaken in 2016. This followed a comparison of the recruited sample with that of the CSO population estimates for age and gender nationally. 102 of the 1131 completed surveys were purposive. 

References:

Haase and Pratschke, (2012). Optimising the Sampling Methodology for CSO Household Surveys Theoretical Considerations and Simulation Study (PDF) Assessed December 2017

Response rate

Excluding the purposive sample and properties where it was not possible, despite call backs, to contact the householder, the response rate of the survey was 47%. Including properties where contact with the householder was not possible in the denominator, the response rate was 19%. 

DATA AND DOCUMENTATION: FILES’ DESCRIPTION

 

Data (available through ISSDA application process)

File name

File format/s

Contents of file

eq5d5l_2018 Stata String data for EQ-5D-5L for Ireland and socioeconomic variables. 

 

Documentation (available for download)

File name

 

File format/s

Contents of file

EQ-5D-5L Survey, 2015-2016 Data Dictionary

Excel

Data Dictionary for Irish EQ5D5L Survey

EQ5D5L Survey, 2015-2016 Questionnaire

PDF

Questionnaire for Irish EQ5D5L Survey

EQ5D5L Survey, 2015-2016 Participant Info

PDF

Participant Information Sheet for Irish EQ5D5L Survey

 

LINKS

Hobbins, A., Barry, L., Kelleher, D., Shah, K., Devlin, N., Goni, J.M.R., & O'Neill, C. (2018). Utility values for health states in Ireland: a value set for EQ-5D-5L. Pharmacoeconomics, 1-9.

Barry, L., Hobbins, A., Kelleher, D., Shah, K., Devlin, N., Goni, J.M.R., & O'Neill, C. (2018). Euthanasia, religiosity and the valuation of health states: results from an Irish EQ5D5L valuation study and their implications for anchor values. Health and quality life outcomes, 16(1), 152

 

ACCESS INFORMATION

Accessing the data

To access the data, please complete a ISSDA Data Request Form for Research Purposes, sign it, and send it to ISSDA by email.

For teaching purposes, please complete the ISSDA Data Request Form for Teaching Purposes, and follow the procedures, as above. Teaching requests are approved on a once-off module/workshop basis. Subsequent occurrences of the module/workshop require a new teaching request form.

Data will be disseminated on receipt of a fully completed, signed form. Incomplete or unsigned forms will be returned to the data requester for completion.

Copyright

Ciaran O'Neill, Queens University Belfast 

Acknowledgements

This study was funded by the Health Research Board under a Research Leader Award. Financial support was also provided by the EuroQol Research Foundation.

Any work based in whole or part on resources provided by ISSDA, should  acknowledge: "Irish EQ-5D-5L Survey, 2015-2016" and also ISSDA, in the following way: “Accessed via the Irish Social Science Data Archive - www.ucd.ie/issda”.

Citation requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical citation

O'Neil, C. (2018). The Irish EQ-5D-5L Survey, 2015-2016 [dataset]. Version 1. Irish Social Science Data Archive. SN: 0060-00. URL http://www.ucd.ie/issda/data/irisheq-5d-5lsurvey2015-2016/

Notification

The user shall notify the Irish Social Science Data Archive of all publications where she or he has used the data.

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