Streamlining patient participation in health research biobanks

Date: Wednesday 9th October 2019
Location: The Orangery, Maryborough House Hotel, Douglas, Cork
This workshop, hosted by The Patient Voice in Cancer Research - About Us (PVCR) and the National Biobank Working Group, is specifically for patients and their families.

The workshop seeks the public’s input into the development of documents that will be used by research teams nationally when asking people to take part in health research biobanks.

A biobank is a collection of human samples such as blood or tissue, along with healthcare data that can be used for health research.

The National Biobank Working Group is developing two standardised documents; a participant information leaflet and a participant informed consent form.

The input of patients and the public will ensure these documents are easy to understand and suitable to give to patients when discussing their involvement in health research.

The event is open to the public and is free of charge. Registration via 

Download flyer: The Patient Voice in Cancer Research - 09 October 2019 Workshop Event
09.00 Patient Advocate Groups/Exhibitors set up
09.30 - 10.00 Registration and Tea/Coffee/Scones
10.00-10.10 Welcome address by Professor Amanda Mc Cann – Chair, the Patient Voice in Cancer Research (PVCR)
10.10-10.20 Dr Robert O Connor, Head of Research Irish Cancer Society (ICS)
10.20-10.30 Ramon Whelan, PVCR Committee member, peer support with the Irish Cancer Society, cancer survivor
10.30-10.40  Ms Ann Cullen - National Biobanking Working Group (coordinated by CRDI)
10.40 – 11.30 Round Table Facilitation and Discussion
11.30 – 11:45 Tea/Coffee break
11.45 – 13.00  Feedback session from all tables
13.00 – 13.45   Lunch