What is the role of the university in enabling the reciprocal involvement of seldom heard voices in health and social care research?

Tue, 05 Mar 2019 13:00:00 GMT

Éidín Ní Shé, UCD

Location: UCD Geary Seminar Room

What is the role of the university in enabling the reciprocal involvement of seldom heard voices in health and social care research?

Abstract

The impact of public and patient involvement (PPI) on research continues to increase across jurisdictions evident in both academic and grey literature. Enabling participation is seen in the literature as being central to the democratic process and ensuring the evidence base is accessible to all. However, challenges persist in particular around the different terms used interchangeably such as PPI; consumer engagement; service users and citizen involvement; issues around ethics and involvement and an acknowledgement that involvement is lacking for diverse populations with a call for more inclusive and democratic models of engagement that are embedded in co‐design. This presentation will provide an overview of the UCD PPI Ignite program and present the results of a rapid realist review that looked to identify the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research. The results point to a variety of mechanisms and resources that need to be considered. Many of the programme theories identified point to the need for a radical shift in current practices within universities to enable the reciprocal involvement of seldom heard groups.

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