The Irish Prostate Cancer Outcomes Research (IPCOR) is establishing a nationwide prostate cancer registry which captures high-quality information from newly diagnosed prostate cancer patients in the Republic of Ireland.
The registry collects clinical data about prostate cancer patients, such as the type of treatment they are receiving, and patient’s self-reported experiences of care, their physical and mental well-being and health related quality of life.
The registry generates robust data on a range of important clinical outcomes of men with prostate cancer and assesses processes, consistency and quality of prostate cancer care. By providing evidence-based data and recommendations to clinicians, hospitals, decision-makers and the National Cancer Control Programme (NCCP), the registry will promote equal access to services and improvements in care nationally.
By bringing together, for the first time, data on clinical and patient-reported outcomes that have been collected over time, the registry will ultimately lead to the improvement of patient experiences and maximise quality of life for men diagnosed with prostate cancer in Ireland.
Please see https://www.ipcor.ie/