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Click here to take the Survey in English if you live in Ireland

כדי למלא את הסקר בעברית- לחץ כאן

Cliccate qui per compilare il questionario in Italiano

Klik hier om de vragenlijst op te halen
 
Click here to take the Survey in English if you live in New Zealand
 
Trykk her for å svare på spørreskjemaet på norsk
 
Click here to take the Survey in English if you live in Nothern Ireland
 
Pinche aquí para realizar la encuesta en español
 
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Click here to take the Survey in English if you live in the UK
 
Click here to take the Survey in English if you live in the USA
 
Dinizani apa kuti mutengemo mbani
 

A reminder that we are aware that the topic of a pandemic is distressing. If you feel that you would need more information about support for families or people with disability during the pandemic you could call The Disability Information Helpline (free call): 1800 643 787. The Helpline is available Monday to Friday 8am to 8pm (AEST). It’s not available on national public holidays. Find out more on the Department of Social Services website.

For information about NDIS plans and services The NDIS Contact Centre is the best option. Call the Contact Centre on 1800 800 110, Monday to Friday 8am to 8pm (local time). Select option 5 for plan enquiries related to COVID-19. Carers can get a wide range of help from counselling and peer support through the Carer Gateway on 1800 422 737. If you need to talk to someone urgently Lifeline has a 24/7 Crisis Support service Call 131114

If you are concerned about this study, you can contact me at the email address below c.bigby@latrobe.edu.au.

 

Obrigado(a) pela sua participação. No futuro, os resultados deste estudo estarão disponíveis no seguinte link:

https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/

Um lembrete de que estamos cientes de que o tópico de uma pandemia é angustiante. Se você gostaria de conversar com alguém sobre suas experiências de cuidador, você pode, como membro da família, acessar https://ouvidoria.mdh.gov.br/portal/servicos/, ou se você é um funcionário(a), pode entrar em contato com a sua organização (Departamento de Recursos Humanos ou Programa de Assistência ao Empregado). Se você está preocupado(a) com a(s) pessoa(s) com deficiências que você apoia, entre em contato com DISQUE 100 (inclusive domingos e feriados, 24h por dia). Se você deseja mais informações sobre este estudo, pode entrar em contato no endereço de e-mail abaixo [Brasil: Profª Drª Flavia H. Santos, flavia.santos@ucd.ie.

 

Please contact the Canadian Association for Community Living

Phone: 416-661-9611
Toll-Free Phone: 1-855-661-9611
Email: inform@cacl.ca

They will connect you with someone who can help in your local region.

Veuillez contacter l'ACIC à
Téléphone: 416 661-9611
Sans frais: 1 855 661-9611
Courriel: inform@cacl.ca

Ils vous mettront en contact avec quelqu'un qui peut vous aider dans votre région.

 

Souhrnná zjištění z této studie budou veřejně dostupná na webu IASSIDD na tomto odkazu:

https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/

Jsme si vědomi, že téma pandemie vás znepokojuje. Máte-li nějaké dotazy k pandemii a s ní souvisejícími opatřeními, můžete se obrátit na telefonní číslo 1212, speciálně zřízené pro tyto účely.  Pokud Vás tato studie zajímá a máte-li nějaké další dotazy, můžete se obrátit na Dr. Šárku Káňovou, kanova@kpg.zcu.cz, 608181260, případně na docenta Jana Šišku, jan.siska@pedf.cuni.cz, 605782190.

 

Wir sind uns bewusst, dass die Pandemie für viele Menschen mit Belastungen, Ängsten und Sorgen verbunden ist. Der Berufsverband Deutscher Psychologen und Psychologinnen (BDP eV) bietet eine kostenlose Hotline  (0800 777 22 44) täglich von 08:00 bis 20:00 Uhr an. Die bundesweiten, gebührenfreien Telefonnummern der Telefonseelsorge lauten 0800/111 0 111 und 0800/111 0 222. Wenn Sie das Bedürfnis haben, mit jemandem über Ihre Assistenz- und Pflegeerfahrungen sprechen zu möchten, kontaktieren sie das Bürgertelefon des Bundesministeriums für Gesundheit  unter der Nummer 030 346 465 100 und 0800 011 77 22. Das Telefon ist von montags bis donnerstags 8 bis 18 Uhr und freitags von 8 bis 12 Uhr besetzt. Wichtige Informationen zur Pflege während der Corona Pandemie können Sie auch auf der Internetseite https://pflegenetzwerk-deutschland.de/corona-informationen entnehmen. Informationen zum Coronavirus in einfacher Sprache können Sie auf dieser Internetseite finden https://www.berlin.de/corona/leichte-sprache/. Wenn Sie Fragen zu dieser Studie haben, können sie sich an die Studienleiterin, Assoc Prof Christine Linehan (auf Englisch) christine.linehan@ucd.ie oder an Prof Thilo Kroll (auf Deutsch) thilo.kroll@ucd.ie per email wenden.

 

Ευχαριστούμε για τη συμμετοχή σας. Λεπτομέρειες από αυτήν τη έρευνα θα είναι διαθέσιμες στον ακόλουθο σύνδεσμο:https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/ . Θα θέλαμε να σας υπενθυμίσουμε ότι γνωρίζουμε ότι το θέμα μιας πανδημίας μπορεί να προκαλέσει αναστάτωση. Εάν πιστεύετε ότι θα θέλατε να μιλήσετε σε κάποιον ειδικό μπορείτε να επικοινωνήσετε με την 24ωρη Γραμμή Ψυχοκοινωνικής Υποστήριξης του Υπουργείου Υγείας και του ΕΚΠΑ ειδικά για τις επιπτώσεις του κορονοϊού: 10 306, με τη 24ωρη γραμμή του Εθνικού Κέντρου Κοινωνικής Αλληλεγγύης: 197 ή με το 24ωρο Δίκτυο κοινωνικής αλληλεγγύης και υποστήριξης: 1037, που παρέχει τηλεφωνική βοήθεια σε άτομα, οικογένειες και ομάδες, που αντιμετωπίζουν καταστάσεις κρίσης, κοινωνικού αποκλεισμού ή αντίστοιχους κινδύνους. Στοιχεία επικοινωνίας για περισσότερες πληροφορίες: Εάν χρειάζεστε περισσότερες πληροφορίες σχετικά με αυτήν τη μελέτη, μπορείτε να επικοινωνήσετε με τη Δρ Νίκη Νεάρχου στη διεύθυνση niki.nearchou@ucd.ie ή στο 0035317168286.

 

你可以在以下鏈接找到有關此項研究的資訊:

https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/

 我們明白,有關COVID-19疫情的話題會令人感到壓抑。如果你需要情緒支援,可以撥打以下熱綫電話:(1)社會福利署24小時熱綫2343 2255(2)醫院管理局24小時精神科電話諮詢服務2466 7350 (3) 香港心理衛生會24小時免費心理健康輔導及資訊熱線2772 0047 (4) 香港撒瑪利亞防止自殺會24小時求助熱線 2389 2222 (5) 利民會《即時通》24小時精神健康支援熱線3512 2626 (6) 明愛向晴軒24小時熱線18288. 你亦可以透過WhatsApp 短訊 (+852) 5164 5040預約香港紅十字會為任何受疫情困擾的市民而設的情緒支援服務。如果你是為智力及發展障礙人士提供服務的工作員,你還可以聯絡你的機構的人力資源部門或員工支援計劃以獲取相關幫助。如果你對這項研究有疑問,可以透過電郵jcui@cuhk.edu.hk或撥打39437504與研究小組的香港地區成員Jialiang Cui (Angela)助理教授聯絡。

 

अध्ययन का विवरण निम्नलिखित लिंक पर उपलब्ध होगा

https://www.iassidd.org/comparative-policy

आपको पुनः याद दिलाना है कि हम लोग जानते हैं कि विश्वव्यापी महामारी संबंधी विषय विक्षुब्ध करने वाला अथवा दु:खद है। यदि आपको लगता है कि आप अपने देखभाल करने वाले अनुभवों के बारे में किसी से बात करना चाहते हो तो आप भारत में, कोरोना महामारी, भारत- केंद्रीय हेल्पलाइन नंबर 91-11-23978046 दिल्ली 91-11-22307145 पर संपर्क कर सकते हैं। राज्यव्यापी फोन नंबर के लिए वेबसाइट

https://www.tractorjunction.com/covid-19-helpline-number/

हैं।यदि आप इस अध्ययन के बारे में चिंतित हैं तो आप प्रोफेसर जयंती नारायण को नीचे दिए गए ईमेल पते पर narayan.jayanthi@gmail.com पर संपर्क कर सकते हैं।

 

A reminder that we are aware that the topic of a pandemic is distressing. If you feel that you would like to talk to someone about your caregiving experiences you may, as a family member, wish to contact Family Carers Ireland on Freephone 1800 24 07 24, or if you are an employee, you may wish to contact your employment Human Resources Department or Employee Assistance Programme. If you are concerned about an individual or individuals with disabilities you support, you may wish to contact the National Advocacy Services on telephone 0761 07300 or the HSE Information Line on 1850 24 1850 or 041 685 0300 (Monday to Saturday 8am to 8pm) or email hselive@hse.ie. If you are concerned about this study, you can contact me at the email address below Christine.Linehan@UCD.ie

תוכל/י למצוא פרטים נוספים על המחקר בקישור הבא: https://www.iassidd.org/comparative-policy

אם יש לך שאלות או חששות לגבי מחקר זה, תוכל לפנות אלי בדוא"ל זה: t.araten-bergman@latrobe.edu.au

כאמור, אנו מודעים לכך שעיסוק בהשלכות של  מגפת הקורונה עלול לעורר מצוקה רגשית. אם בעקבות השתתפותך בסקר את/ה מרגיש רצון או צורך לדבר עם מישהו על החוויות שלך כתומך/ת באדם עם מוגבלות שכלית התפתחותית בתקופת הקרונה, תוכל/י לפנות לשירותים הבאים לקבלת יעוץ ותמיכה:

 ער"ן (עזרה ראשונה נפשית), טלפון: 1201, אתר: https://www.eran.org.il

ארגון קשר (ארגון למען ועם משפחות לילדים ובוגרים עם מוגבלויות): https://www.kesher.org.il

תודה על שיתוף הפעולה

 

I dettagli di questo studio saranno disponibili al seguente link:

https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/

Un promemoria per ricordare che l'argomento di una pandemia è angosciante e che se ritieni di voler parlare con qualcuno delle tue esperienze di caregiving potresti, come membro della famiglia, voler contattare uno dei servizi che sono messi a disposzione gratuitamente come ad esempio il numero verde della CRI 800 065510, o se sei un dipendente, potresti voler contattare l'ufficio risorse umane del tuo datore di lavoro o il programma di assistenza dei dipendenti. Se sei preoccupato per una persona o alcune delle persone con disabilità che sostieni potresti contattare i servizi di tutela nazionale come quello della CRI al telefono 800572775 (gli operatori del contact center saranno disponibili a raccogliere le segnalazione tre giorni a settimana, martedì, mercoledì e giovedì dalle ore 9,30 alle 13,30 e nel pomeriggio dalle ore 15,30 alle 17.00), o siti di associazioni regionali o via email contattando la Fish http://www.fishonlus.it/contatti/. Se hai domande su questo studio, puoi contattarmi al seguente indirizzo di posta elettronica: dott. Tiziano Gomiero, indirizzo mail: t.gomiero@anffas.tn.it o 0461/407500

  We zijn ons ervan bewust dat het onderwerp van deze studie (de Covid-19 pandemie) vragen op kan roepen.

Heeft u algemene vragen over het coronavirus? Dan kunt u terecht bij het publieksinformatienummer van de Rijksoverheid 0800 - 1351 (bereikbaar tussen 08:00 en 20:00 uur).

Informatie over het Coronavirus in eenvoudige taal vindt u via de volgende website: https://www.rijksoverheid.nl/onderwerpen/coronavirus-covid-19/uitgelicht-corona/uitgelicht-corona-eenvoudig

Specifieke informatie over COVID-19 in relatie tot mensen met een verstandelijke beperking vindt u via de volgende website: https://www.vgn.nl/faq/veelgestelde-vragen-over-het-coronavirus

Voor vragen over deze studie kunt u contact opnemen met dr. Femmianne Bredewold – onderzoeker aan de Universiteit voor Humanistiek te Utrecht. U kunt haar bereiken via f.bredewold@uvh.nl
 

We are aware that talking about the pandemic may be distressing.  If you feel that you would like to talk to someone about your caregiving experiences you may, as a family member, wish to contact Carers New Zealand on 0800 777 797 or www.carers.net.nz . If you are concerned about an individual or individuals with disabilities you support, you may wish to contact the National Health and Disability Advocacy Service on 0800 555 050 or email advocacy@advocacy.org.nz   If you are concerned about this study, you can contact Dr Brigit Mirfin-Veitch at the following email address, director@donaldbeasley.org.nz

 

Detaljer fra denne studien vil være tilgjengelige på følgende lenke

https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/

Vi er klar over at temaet for en undersøkelse om en pandemi kan være urovekkende. Hvis du føler at du trenger å snakke med noen om dine opplevelser, kan du som ansatt kontakte nærmeste leder, eventuelt HR- avdelingen eller bedriftshelsetjenesten. Det fins også en nasjonal korona-telefon på nr 815 55 015, en nasjonal informasjonsside om utviklingshemming og korona-virus på https://naku.no/personer-med-utviklingshemming-og-koronavirus. Mange kommuner har også en lokal korona-telefon. Som familiemedlem kan du også kontakte kommunen for støtte. Du kan f eks gå via ledelsen for det stedet som yter tjenester. Hvis du har spørsmål om denne studien, kan du kontakte den nasjonale kontaktpersonen, professor Jan Tøssebro på e-post jan.tossebro@ntnu.no.

 

A reminder that we are aware that the topic of a pandemic is distressing. If you feel that you would like to talk to someone about your caregiving experiences you may, as a family member, wish to
contact the Public Health Agency on 0300 555 0144, or if you are an employee, you may wish to contact your employment Human Resources Department or Line Manager.

If you are concerned about an individual or individuals with disabilities you support, you can contact the NSPCC on 0808 800 5000.

You can also contact your local Trust Safeguarding Team:
Belfast HSC Trust - 028 9050 7000
Northern HSC Trust - 0300 1234 333
South Eastern HSC Trust - 0300 1000 300
Southern HSC Trust - 0800 7837 745
Western HSC Trust - 028 7131 4090

If you are concerned about this study, you can contact me at the email address below Michael Brown, m.j.brown@qub.ac.uk


 

Los detalles de este estudio estarán disponibles en el siguiente enlace:

https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/

Somos conscientes de que el tema de una pandemia puede ser angustiante. Si cree que le gustaría hablar con alguien sobre sus experiencias como cuidador, puede, como familiar, comunicarse con los Servicios de Atención Psicológica para Afectados por la COVID-19 en el teléfono gratuito 91-700-79-89. Si es usted un empleado, puede comunicarse con el Departamento de Recursos Humanos de su empresa. Si le preocupa la persona o personas con discapacidades a las que cuida, puede contactar igualmente con el Servicio de Atención Psicológica para Afectados por la COVID-19 (91-700-79-89). Si le preocupa alguna parte de este estudio, puede ponerse en contacto a través de las siguientes direcciones de correo electrónico  [En España: mafernan@ual.es o mgj605@ual.es].

 

Detaljer från denna studie kommer att finnas tillgängliga på följande länk:

https://www.ucd.ie/psychology/ucdcentrefordisabilitystudies/covid19idd/

Vi är medvetna om att pandemin kan vara oroande. Om du känner att du vill prata med någon om dina upplevelser kan du kontakta din vårdcentral, öppenvårdspsykiatrin, din arbetsgivare eller företagshälsovården. Om du är orolig för en person med intellektuell funktionsnedsättning kan du kontakta socialtjänsten, hälso- och sjukvården eller LSS-handläggaren. Om du har frågor om den här studien kan du kontakta den ansvarige forskaren i Sverige, dvs Magnus Tideman på e-postadressen Magnus.Tideman@esh.se

 

We are aware that the topic of a pandemic is distressing. If you feel that you would like to talk to someone about your caregiving experiences you may, as a family member, wish to contact Mencap (https://www.mencap.org.uk/advice-and-support/coronavirus-covid-19,  phone 0808 808 1111 or email) helpline@mencap.org.uk or the National Autistic Society (https://www.autism.org.uk/services/helplines/).  If you are an employee, you may wish to contact your organisation’s Human Resources Department or contact UNISON (https://www.unison.org.uk/care-workers-your-rights/coronavirus-advice-social-care-workers/ or the Local Government Association (https://local.gov.uk/our-support/workforce-and-hr-support/wellbeing/covid-19-social-care-staff-wellbeing).

If you are concerned about an individual or individuals with disabilities you support, you may wish to contact a senior manager in your organisation, the person’s care manager or social worker,  the safeguarding officer in your local authority/council, or the agency that  registers and inspects the service in which you work (e.g. the Care Quality Commission in England, the Care Inspectorate in Scotland and Wales, the Regulation and Quality Improvement Authority in Northern Ireland, Ofsted in England and Northern Ireland,  Education Scotland, Estyn in Wales).

You can also find helpful information on https://www.scie.org.uk/care-providers/coronavirus-covid-19 particularly their page on learning disability and autism: https://www.scie.org.uk/care-providers/coronavirus-covid-19/learning-disabilities-autism

You can also access some resources related to supporting children and adults with learning disabilities and/or autism at https://www.unitedresponse.org.uk/resource/stay-inside-be-inspired/

If you are concerned about this study, you can contact me at the email address below j.d.beadle-brown@kent.ac.uk

If you are in distress and feel that you would like to talk to someone about any problems you are having -- either as a family member or caregiver/support staff, there are 4 agencies that can offer some help.  1) The Arc which has chapters around the country.  To find an Arc program near you, follow this link: https://thearc.org/find-a-chapter/#

2) There is a federally funded Protection and Advocacy agency in each state.  To find the one in your state, follow this link:  https://www.ndrn.org/about/ndrn-member-agencies/

3) There is a public developmental services agency in every state.   To find out how to contact the agency in your state, follow this link:  https://www.nasddds.org/state-agencies/

4) There is a protective services agency in every state where you can report abuse, neglect and exploitation.  To find how to contact this agency in your state, follow this link: https://www.napsa-now.org/get-help/help-in-your-area/

 

Tikumbutsane kuti tikudziwa bwino lomwe kuti nkhani yamatenda awa yikudetsa nkhawa.

Ngati mungafune kukamba ndi munthu wina za nchito yanu yothandizira, monga banja,mungakhoze kutero kupitira kwa alangizi a KARA pa nambala iyi 0211 229847/2776, Kapena
ngati mugwira nchito mungathenso kukamba ndi oyanganira pa anyanchito anu.

Ngati muli okhudzidwa ndi munthu munthu Kapena anthu opunduka amene mukuthandiza, mukhoza kuyimba lamya pa nambala iyi 0211 261051 kwamasiku awa (Lolemba kufika pa Chisanu) ngati mufuna Lumba zambiri za maphunziro awa, mukhoza kundifika pa Keyala ili munsimu.

 

 

 

List of Collaborators

 

ROLE

NAME

AFFILIATION

Principal Investigator

Associate Professor Christine Linehan

UCD Centre for Disability Studies, University College Dublin, IRELAND.

Researcher

Adam Nolan

UCD Centre for Disability Studies, University College Dublin, IRELAND.

Co-applicant

Professor Julie Beadle Brown

Tizard Centre, University of Kent, UNITED KINGDOM.

Co-applicant

Professor Christine Bigby

Living with Disability Research Centre, La Trobe University, AUSTRALIA.

Co-applicant

Professor Thilo Krill

School of Nursing, Midwifery and Health Systems, University College Dublin, IRELAND.

Co-applicant

Professor Mac MacLachlan

School of Psychology, Maynooth University, IRELAND.

Collaborator

Gail Birkbeck

Business Information Systems, University College Cork, IRELAND.

Collaborator

Valerie Bradley

Human Services Research Institute, UNITED STATES.

Collaborator

Dr Femmianne Bredewold

University of Humanistic Studies, NETHERLANDS.

Collaborator

Dr Masauso Chirwa

School of Humanities and Social Sciences, University of Zambia, ZAMBIA.

Collaborator

Dr Šárka Kanova

Department of Education, School of Education, University of West Bohemia, CZECHIA.

Collaborator

Prof Jayanthi Narayan

Inclusive Education at Faculty of Health, Education and Society, University of Northampton UNITED KINGDOM and Consultant in Special and Inclusive Education, INDIA

Collaborator

Dr Niki Nearchou

UCD School of Psychology, University College Dublin, IRELAND.

Collaborator

Dr Flavia Santos

UCD School of Psychology, University College Dublin, IRELAND.

Collaborator

Associate Professor Jan Šiška

Department of Special Education, School of Education, Charles University, CZECHIA.

Collaborator

Prof Jan Tossebro

Department of Social Work, Norwegian University of Science and Technology, NORWAY.

IASSIDD CPP Member

Prof Michael Brown

School of Nursing and Midwifery, Queen’s University, Belfast, UNITED KINGDOM.

IASSIDD CPP Member

Dr Mary-Ann O’Donovan

Centre for Disability Studies, University of Sydney, AUSTRALIA.

Recommended Partner

Dr Tal Araten-Bergman

Living with Disability Research Centre, La Trobe University, AUSTRALIA.

Recommended Partner

Professor Tim Stainton

Canadian Institute for Inclusion and Citizenship, University of British Columbia, CANADA.

Recommended Partner

 Dr Jennifer Baumbusch

Canadian Institute for Inclusion and Citizenship, University of British Columbia, CANADA.

Recommended Partner

Prof Magnus Tideman

Ersta Sköndal Bräcke University, Department of Social Sciences, Sköndal, SWEDEN.  Halmstad University, School of Health and Welfare, SWEDEN.

Recommended Partner

Dr Jialiang (Angela) Cui

 

Department of Social Work, The Chinese University of Hong Kong, Hong Kong, CHINA.

Recommended Partner

Dott. Tiziano Gomiero

ANFFAS TRENTINO ONLUS, DAD© project group, Trento, ITALY.

Recommended Partner

Dr Brigit Mirfin-Veitch

Donald Beasley Institute, Dunedin, NEW ZEALAND.

Recommended Partner

Marta Godoy Gimenez

Department of Psychology, University of Almeria, SPAIN.