Conference on Duchenne Muscular Dystrophy
‘Duchenne Muscular Dystrophy– Finding Solutions in Ireland’
Voluntary Group hosts International Conference on Duchenne Muscular Dystrophy in Croke Park in June 2015.
An International conference on Duchenne Muscular Dystrophy (DMD) is being held in Croke Park on 24th June 2015. The conference titled ‘Duchenne Muscular Dystrophy– Finding Solution in Ireland’ - is being organised by the The Join Our Boys Trust.
The Join our Boys Trust was established in 2014 to provide funds for three Roscommon brothers who have Duchenne Muscular Dystrophy (DMD). Nine year old Archie and twins George and Isaac, who are four, are the only children of Paula and Padraic Naughton from Roscommon. Currently DMD has no treatment; DMD has no cure. The ultimate aim of The Trust is to help provide funds to find a treatment, ideally a cure, for all children diagnosed with this catastrophic disease.
The conference is open to health professionals, particularly Neurology, Respiratory and Cardiology Paediatric specialists, along with General Practitioners, Public health nurses, Occupational therapists, Physiotherapists and Social Care Workers. Any health professional dealing with childhood muscular dystrophy will find the day educational as will parents caring for children with DMD, who themselves are experts by experience. Other voluntary or statutory agencies with an interest in DMD and rare disease will also find the day of value.
Some of the foremost researchers and clinicians on DMD in the world are speaking at the conference. They include Professor Dame Kay Davies, Oxford, Professor George Dickson, London and Professor Kate Bushby from Newcastle, England. Dr. Paddy Murphy, a Respiratory Physician from London will speak on managing respiratory problems in children with neuromuscular disease, and Professor Eileen Treacy and Dr. Denise McDonald will speak on the Irish situation for children with Duchenne Muscular Dystrophy.
Approval for CPD points has been applied for from the RCPI and ICGP, INMB, and professional colleges of allied health professionals.
A detailed programme and registration details is available on www.joinourboys.org
Registration and further information is available here.
Please note that this event is not being organised by the UCD School of Medicine & Medical Science. Details are posted here to help publicise the event. The School does not accept responsibility for any inaccuracies or changes to the event which may occur. Please liaise directly with the event organisers.