We believe that through public and patient involvement (PPI) in health research, we can better shape the research agenda together, improve the quality of our research, its relevance to society and positively impact on patient outcomes ultimately.
PPI describes a whole variety of ways in which researchers can engage with the people for whom their research is relevant. It is an important step in ensuring that the real life experiences of patients are considered in decision-making processes around research.
At UCD Conway Institute, the Patient Voice initiative began in April 2016 when more than 100 cancer survivors and their families joined health care professionals, researchers, patient advocates, funding agencies and charity groups at an open forum in UCD.
The discussion focused on placing survivorship at the heart of the research agenda and giving participants the opportunity to voice the questions and concerns that matter most to cancer patients and are likely to improve the relevance of cancer research.
Today, the initiative has expanded considerably and now involves researchers working in a number of disease focused research areas.
Lead: (opens in a new window)Prof. Amanda McCann
Hosted by UCD Centre for Translational Oncology
Engaging cancer patients, cancer researchers and other interested parties (families, support-givers, patient advocates and healthcare professionals) in discussions and decision making that positively impact on cancer treatment and patient outcomes.
Learn more: www.ucd.ie/patientvoicecancer
Contact: (opens in a new window)patientvoicecancer@ucd.ie