Wednesday, 19 October 2016 from 08:30 to 13:00 at UCD Charles Institute of Dermatology

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Patient Voice in Cancer Research II

Schedule for the event: 

08.30 Registration & Refreshments (UCD Charles Institute foyer).

09.00 Welcome address by Amanda McCann 

09.10 – 09.25 Personal and Public Involvement (PPI) in Northern Ireland by Ruth Boyd and Margaret Grayson 

09.25 – 09.40  Discussion / Questions re PPI involvement

09.45 – 10.00 Macmillan Cancer Support, Carol Naylor and Michael Howard

10.00 – 10.15 Discussion / questions re: Macmillan cancer support.

10.15 – 11.15  Workshop 1:  “Voice your opinion on Cancer Research

Group participation: Designing a questionnaire for patients to get involved in cancer research.  The group will put forward questions and add to a template designed to see if patients might wish to involve themselves in research during or after their treatment, to provide samples or contribute in other ways in the early stages of cancer research.  This information could culminate in a patient register –identifying patients/survivors interested in participating in collaborating with researchers.

11.15 – 11.30  Coffee Break

11.40 – 12.20  Workshop 2: “What are researchers doing for me?

Group participation: How should those interested in research be informed about the above questionnaire? What are the best channels to disseminate the questionnaire (in person / website).  At what stage of treatment should it be given (during or after treatment)

12.20 – 13.00 Collation of Workshop 1 and 2 ideas:

13.00 Lunch


A research symposium will be held by BREAST-PREDICT from 2pm - 6pm.  Full details below: