IDS-TILDA

The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), 2011-2020

Study number (SN): 0073-00

0073-02 IDS TILDA WAVE 2 Loneliness Consequences

0073-04 IDS-TILDA WAVE 4 COVID-19 Phase 1

ABOUT THE STUDY

The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) is a longitudinal study researching ageing in Ireland among people with an intellectual disability aged 40 and over. This study is the first of its kind in Europe, and the only study able to directly compare the ageing of people with an intellectual disability with the general ageing population. The underpinning values of IDS-TILDA are inclusion, choice, empowerment, person centred, the promotion of people with intellectual disability, the promotion of best practice and to contribute to the lives of people with intellectual disability.

Data Creator: Prof. Mary McCarron, Principal Investigator, IDS-TILDA, Trinity Centre for Ageing and Intellectual Disability, School of Nursing and Midwifery, Trinity College Dublin.

Funding Organisation: Health Research Board

The objectives of IDS-TILDA are:

to understand the health characteristics of people ageing with an intellectual disability;
to examine the service needs and health service utilization of people ageing with an intellectual disability;
to identify disparities in the health status of adults with an intellectual disability as compared to The Irish Longitudinal Study on Ageing’s (TILDA) findings for the general population; and
to support evidence-informed policies, practices and evaluation

MAIN TOPICS

Ageing
Intellectual disability
Health
Mental health
Social inclusion

COVERAGE, UNIVERSE, METHODOLOGY

Population

Individuals with Intellectual Disability aged 40 years and older in the Republic of Ireland. A nationally representative sample was taken.

Observation units

Individual

Temporal coverage

See individual waves for details.

Time dimension

Cross-sectional longitudinal. Cohort study.

Geographical coverage

Country: Ireland

Methods of data collection

CAPI (Computer Aided Personal Interviewing)

Sampling procedures

An original nationally representative sample of 753 adults with an intellectual disability aged 40 years and over in the Republic of Ireland was randomly drawn for Wave 1 of IDS-TILDA. The National Intellectual Disability Database (NIDD) provided the sampling frame for recruitment, with support of the Health Research Board (HRB).

Following three waves of data collection, with participants interviewed every three years, the remaining sample of 609 participants was refreshed prior to Wave 4, to maintain representativeness of the sample and statistical power. As in Wave 1, once again the HRB supported use of the NIDD to anonymously recruit eligible adults with intellectual disability. A final sample of 739 adults with intellectual disability was achieved for Wave 4 of the longitudinal study.

LINKS

For more information about IDS TILDA and TCAID please visit:

https://idstilda.tcd.ie/

https://www.tcd.ie/tcaid/

ACCESS INFORMATION

Accessing the data

To access the data, please complete a ISSDA Data Request Form for Research Purposes, sign it, and send it to ISSDA by email.

Data will be disseminated on receipt of a fully completed, signed form. Incomplete or unsigned forms will be returned to the data requester for completion.

Copyright

Copyright and all other intellectual property rights relating to the data, and any documentation concerning the collection of IDS-TILDA data, are vested in The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing and Trinity College Dublin.

Acknowledgements

Any work based in whole or part on resources provided by the ISSDA, should acknowledge: “The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA)" and also ISSDA, in the following way: “Accessed via the Irish Social Science Data Archive - www.ucd.ie/issda”.

Citation requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

ISSDA