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Resources for charities and community organisations active in PPI

As PPI grows so too do the requests to community based organisations to link researchers with the community that those organisations serve. This can cause additional pressure and can lead to undue burden on organisations and their staff or volunteers.

We worked with a range of charitable, community and voluntary based organisations with experience of PPI approaches from academic researchers. Together we co-created tools to make the initial approach or relationship building phase of PPI more sustainable for charities in practice.

Building PPI relationships

Watch the launch of the co-developed resources for charities and community organisations.

Introduction: Prof Thilo Kroll, Site Lead PPI Ignite Network @ UCD

Overview of resources: Dr Emma Dorris, Programme Manager PPI Ignite Network @ UCD

Panel Discussion


  • Dylan Keegan, Research Subject Advocate, UCD Clinical Research Centre


  • Sarah Delaney, Health Research Charities Ireland
  • Dympna Mulroy, Muscular Dystrophy Ireland
  • Joanne Murphy, Family Carers Ireland

Shared application processes

Some charities have a formal application process for researchers who would like to work with them or their community. These organisations have kindly shared their application forms to help other organisations.

The(opens in a new window) Alzheimer Society of Ireland have shared both their (opens in a new window)guidelines for engagement and their (opens in a new window)application form

Health Research Charities Ireland developed an application template to help HRCI member organisations to formalise their engagements with researchers who are looking to you for support in their PPI activities. Download HRCI application template

Expectations of Engagement

Mismatch of expectations between researchers and voluntary and community-based organisations was identified as a key challenge. In response, this template was developed for charities and community based organisations to clearly outline what can be expected from the organisation, and what the organisation expects from researchers who approach them with requests related to PPI.

This is designed as a template only, the expectations of engagement for individual voluntary and community based organisations will differ. Each organisation should develop and adapt the format and content according to their needs and context.

(opens in a new window)Download template

PPI Connect Decision Tool

The PPI Connect Decision Tool was developed to aid charity and community organisations to prioritise which approaches from researchers may be of their benefit to invest time in. The intent is to help process the requests in a way that ensures mutual benefit to the organisation.

(opens in a new window)Download the PPI Connect Decision Tool

The decision tool is also provided as an editable version. No two organisations are the same. We encourage voluntary and community based organisations to adapt and amend this tool as relevant to you and your organisation. 

(opens in a new window)Download the editable file of the PPI Connect Decision Tool

Contact PPI Ignite Network @ UCD

UCD Research, University College Dublin, Belfield, Dublin 4, Ireland.
T: +353 1 716 4009 | E: ppi@ucd.ie | Location Map(opens in a new window)