News from the PPI Ignite Network @ UCD
Keep up to date about the work of the PPI Ignite Network @ UCD
PPI Seed Funding Open
The 2024 round of PPI seed funding is now open.
This year's theme is Innovative approaches and methodology related to equality, diversity and inclusion in PPI in research.
Apply for up to €4,000, submission deadline is 14 July 2024, 5pm.
Applications must include active collaboration between UCD researchers and members of the public, patients, carers or communities.
The focus should be on improving the approaches for public involvement in research. The emphasis of the proposal is on advancing inclusive practices in PPI in terms of innovative methodologies or work with populations that are currently underrepresented in PPI and research.
UCD Team Awarded PPI Achievement of the Year Award
Irish Cancer Society Research Awards 2024
People involved in ground-breaking research projects around the country were honoured at the (opens in a new window)Irish Cancer Society Research Awards in February 2024.
The event celebrated the central contribution of patients and survivors to innovative research projects that help to improve the lives of those impacted by cancer. This was reflected in the category of Patient and Public Involvement (PPI) Achievement of the Year Award, which went to a group of PPI members and researchers from University College Dublin who have worked together to incorporate the patient voice into ovarian cancer research. The team includes Claire Hughes, Adele Connor, Asia Jordan, Lea Schäfer, Brigid Carr, Katayoun Bahramian, Ingrid Halligan Dunne, Lorraine McNally, Deirdre O' Raw, (opens in a new window)Dr Arman Rahman, Yvonne O’Meara, Teerna Banerjee, Chowdhury Arif Jahangir and (opens in a new window)Dr Antoinette Perry.
Also on the night, Dr Luke Jones was awarded Senior Researcher of the Year. Dr Jones is a translational researcher at Systems Biology Ireland in University College Dublin working in the area of Childhood leukaemia and highlighted the role of the (opens in a new window)Young Person's Advisory Group (YPAG) in influencing his research.
The prize of PhD Researcher of the Year went to (opens in a new window)Chowdhury Arif Jahangir for his research to identify ways to better assign breast cancer patients to the right treatment options. He was also a member of the team awarded PPI Achievement of the Year Award.
The Irish Cancer Society is a community of patients, survivors, volunteers, supporters, health and social care professionals and researchers. Together they are transforming the experiences and outcomes of people affected by cancer through advocacy, support services and research. For more, visit (opens in a new window)cancer.ie.
PPI and research ethics approval
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Update
PPI Ignite Network statement on research ethics committee approval is now available to view or download on the National PPI Ignite Network website. (opens in a new window)Click here for more information.
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>>>Thank you for participating<<<
The PPI Ignite Network has developed a statement to clarify the frequently asked question Is research ethics committee approval required to involve the public in research?
We now ask for your feedback on the statement. We are specifically interested in your view on the clarity and usability of the statement for PPI in research in Ireland.
(opens in a new window)Fill in a short anonymous feedback survey
This work has been co-developed by work package 3 of the PPI Ignite Network, led by PPI Ignite Network @ UCD and PPI Ignite Network @ RCSI, with significant input from members internal and external to the Network.
You can contact(opens in a new window)ppi@ucd.ieif you have any queries or questions related to this work.
2023 UCD Festival Fund
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The second (opens in a new window)National PPI Festival will take place from 1-31 October 2023, showcasing and celebrating the incredible progress in public and patient involvement (PPI) in Irish research.
PPI Ignite Network @ UCD offered supports of €300 to assist UCD staff and students in hosting a PPI Festival event that aligns to the aims of the (opens in a new window)National PPI Festival. The successful applicants are:
- Dr. Jude Bek (UCD School of Psychology) (opens in a new window)Dance and the brain in Parkinson’s
- Niamh Vickers, Denise McGuinness, and Assoc. Professor Kate Frazer (UCD School of Nursing Midwifery and Health Systems. A co-designed PPI study of breastfeeding knowledge, practices and attitudes in general practice: panel discussion of implications, education, practice and research
- Dr. Shane O'Grady and (opens in a new window)Precision Oncology Ireland (UCD School of Medicine). POI-2 Patient Consultation.
- Dr. Irene Lara-Sáez (UCD Charles Institute of Dermatology). The EB Expert Workshop: Understanding Gene Editing
See all UCD National PPI Festival events here
Scanning Horizons PPI Workshop: Resources
The PPI Ignite Network @ UCD delivered a workshop on 09 August 2023.
Public and Patient Involvement (PPI): Achieving Equitable Change and Collaborative Working in Research with Seldom Heard Voices was delivered as part of the programme at Scanning Horizons, Driving Change, Building a Healthier World, the inaugural international research conference hosted by the UCD School of Nursing, Midwifery and Health Systems.
We have compiled a page of resources to help workshop attendees to put your new knowledge into action.
Bursaries to attend PPI Summer School in Limerick
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The PPI Summer School held by University of Limerick is now in it's 8th year. The PPI Summer School provides a co-learning environment to build capacity for high-quality PPI in health research. This will be accomplished through training, sharing and networking among researchers, patients, carers, clinicians, policy-makers and other relevant partners.
We have a number of bursaries available for early career researchers to attend the Summer School in Limerick this year.
Get involved with ovarian cancer research this World Ovarian Cancer Day
This World Ovarian Cancer Day, May 8th, PhD researchers from the Cancer Biology and Therapeutics laboratory at University College Dublin are inviting members of the public and people who have been affected by ovarian cancer to get involved with their cancer research.
The group has established a very active patient advisory committee, and together they were awarded a prestigious Public Patient Involvement award from the Irish Cancer Society in 2022. This award is supporting their efforts to now try and broaden public and patient involvement in their research. To learn more about research in the Cancer Biology and Therapeutics laboratory, visit (opens in a new window)www.cbtlab.ie.
Lasting Impact Award
Prof Thilo Kroll, site lead for PPI Ignite Network @ UCD was awarded a ‘Lasting Impact Award’ by the Dublin Simon Community for his invaluable pro-bono work working with clients in co-designing a mental health support for young adults experiencing homelessness in Dublin.
Assoc Prof Kate Frazer (UCD SNMHS) also received a Lasting Impact Award. Together they led the PhotoVoice and Co-Design phase of the project which was the core piece of work in terms of understanding the needs of the cohort and capturing their recommendations for service provision.
The Dublin Simon Community received funding from the Kind Baudouin Foundation in Belgium for this project.
The project report can be found (opens in a new window)here.
Pictured L-R: Pat Greene (Head of Policy, Advocacy and Volunteering, Dublin Simon Community), Prof Thilo Kroll (UCD), Catherine Kenny (CEO, Dublin Simon Community).
PPI Resource Centre for Translational Researchers
The Patient Engagement Resource Centre (PERC) for translational researchers has been launched. (opens in a new window)EATRIS and the European Patients’ Forum ((opens in a new window)EPF), together with affiliated partner European AIDS Treatment Group ((opens in a new window)EATG) launched the PERC at the end of March. The PERC was developed as part of the Horizon 2020 project, (opens in a new window)EATRIS-Plus.
These PPI/patient engagement resources focus specifically on the needs of preclinical and translational researchers.
Dr. Emma Dorris (PPI Ignite Network @ UCD) and Prof. Amanda McCann (Patient Voice in Cancer Research) were part of the taskforce involved in its development.
You can visit the PERC at (opens in a new window)www.patient-engagement.eu(opens in a new window)
PPI in lab-based Vision Research
Recent UCD doctoral graduate Dr. Ailís Moran wrote a blog on her experience with PPI throughout her PhD research. Writing for the Association for Research in Vision and Ophthalmology (ARVO), Dr. Moran highlights how she benefited from the involvement of people living with vision impairment throughout her research as part of the UCD Ocular Pharmacology and Genetics Group. You can read the blog (opens in a new window)here
Resources from Festival Events
Attended a National PPI Festival @ UCD event but didn't note down a resource mentioned? You'll find a collection of those resources here!
Citizen's Jury Announce Verdict on the Future Use of Genomics in Health Care and Research in Ireland.
The Citizens’ Jury on the Future Use of Genomics in Health Care and Research in Ireland, today published its verdict. Organized by the Irish Platform for Patient Organisations, Science and Industry (IPPOSI), the 24-member jury of members of the public, are united in their appeal for greater national-level planning and action around genomics now and into the future.
This ‘national conversation’ is about many of the important ethical issues and values which underpin how the health service can be modernised for generations to come. It is a task which jurors acknowledge may feel intimidating and uncomfortable to engage on – but one which they believe can lead to greater levels of public trust.
Read all about the Citizen Jury (opens in a new window)here and read the full report (opens in a new window)here.
UCD are a scientific member of IPPOSI.
IPPOSI are a National Partner of the PPI Ignite Network.
New Podcast Series: Ignite Involvement
PPI Igite Network @ UCD have launched a new podcast series. Ignite Involvement is a podcast series featuring a wide variety of guests including PPI partners, researchers and community organisations. Guests chat about all things PPI. The first series has five episodes and is available for your listening pleasure now!
Find out more and listen to Ignite Involvement here.